Short Executive Status (Summary) -- Blog is below

Active Tumors:
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5+ liver tumors -- largest is 7 cm by 5.2 cm (70 x 52 mm), Gold tracers inserted Nov 21 for CyberKnife x-ray 3D movement tracking. Thu Dec 1st,2011, CyberKnife planning. Dec 16th, treatment 1/3 done to whole liver. Dec 19th, treatment 2/3 done to whole liver. Dec 21st, treatment 3 failed, couldn't get tracer alignment. Dec 22nd, treatment 2.5/3 done using 2 of 4 tracers. Final 0.5 treatment was to be done Tue Dec 27th. Cancelled due to complications and hospitalization.

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12 lung tumors -- largest is 8 mm in size (0.8 cm)

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1 lymph node tumor -- near left renal vein & artery of left kidney (1.4 cm). Nov 14th: Ultrasound done of both kidneys and bladder area, all 3 areas are cancer free.

» 3rd-8th brain tumors -- 6 new brain tumors. Sizes all less than 5mm(0.5cm). Some as small as 2mm(0.2cm). Full brain radiation or CyberKnife TBD in Jan after 2nd MRI to see speed of growth.

Inactive Tumors:
» 2nd brain tumor -- Killed via CyberKnife Sep 29/2011, 5 mm in size (0.5 cm).
» 1st brain tumor -- Killed via CyberKnife May/2011, was 20 mm in size (2 cm). Nov 21st, still showing brain tissue swelling, but not active.
» Original Esophogeal Cancer tumor (source of everything) -- Surgically removed June/2010 by 3-field Esophogectomy. Was roughly large egg sized.

[ Note: 2.54 cm = 25.4mm = 1 inch ]

5 pictures included in album


2011_11_16, Shane in BIG CHAIR



Link to 34 surgery June 2010 pictures and some post surgery shots.

Latest Picture

Latest Picture
Shane - 2011_11_27, Photo Shoot lighting prep

Monday, May 9, 2011

Weekend of rest done. Weaning starts.

Well, the weekend of rest went well. No side-effects. Everything in the clear.

Radiation
The follow-up meeting with the radiation doctor stated that I am done radiation for this step. The weaning off of the dexamethasone begins Tuesday (tomorrow). It should take about 9 days to wean me off of it. Aggressive weaning as they say I'm still young and should be able to handle it. If I have sever head-ache, then to go back to previous step of the weaning and start again (3 day cycle of 3 cycles of weaning = 9 days, or more if I have to back-track... not bloody likely! I'll tough out a head-ache any day rather than be on this stuff any longer than I have too!!!)

I have an MRI follow-up in 1 month. To look for new cancer growth, and to see the blood vessel health around the previously killed tumor.

Seizure - Drivers License
I've received a referral to a brain doctor (Neurologist?) that will be tracking my Seizure activity (or lack there off) and control my seizure drugs going forwards. This is a requirement if I ever want my driver's license to be re-instated via a medical statement of mental fitness.


Chemo
Tomorrow (Tue) is my lab work and meeting with my Chemo doctor. She will assist me in continuation of the treatment that began and was so rudely interrupted for my liver cancer. While ultimately I want to pursue radiation surgery (CyberKnife) for the liver cancer as well, I need the cancer to remain until we find chemo that works on esophageal cancer that has moved through my blood stream to my liver (and I guess my brain). Without finding a chemotherapy source to kill the microscopic cells, then I'll be doomed to repeatedly get cancer popping up, and eventually it will be in my lungs and bone tissue among other places. This must not happen!

So, the liver cancer stays as a sign that the chemo drug they have picked has any affect at all on this genetic strain of cancer. If the cancer shrinks, then we have a working chemo, and we can then quickly pursue the CyberKnife for the liver cancer.

So, with this method, I can win the WHOLE WAR... not just a few battles. So far, I've won two battles: 1) esophagus, 2) brain. But if I have 500 battles left, and I lose most of them, then the war is lost. My goal is to win all battles, and the war, and to reduce the number of battles to the bare minimum (I have at least 3 battles left, which can all 3 be handled in 1 CyberKnife session, but there could be more... thus the chemotherapy to eradicate the unknown.)

Overall, I feel good to have the brain thing taken care of. I felt so good that last night I ate lots of food and stayed up until 6am (kids get up at 7am). Yes that was dumb... I won't be doing it again. But I was wired and happy so I couldn't sleep anyway.

-- Shane

1 comment:

  1. Whoop! There it is!!
    Say "Yeah!" Put your hands up!
    Go Shane. Go Shane. Go Shane!!
    I am so happy for you, and hundreds of people are still praying their guts out for you.
    You are the strongest fighter I've ever seen. Mohammed Ali had NUTHIN' on you.
    Whatever you need. Just let us know.
    Float like a...ummm...guy who's been on chemo...and sting like a...skinny white kid. Yeah. Okay. Gotta work on the poetry angle. lol

    ReplyDelete