Short Executive Status (Summary) -- Blog is below

Active Tumors:
»
5+ liver tumors -- largest is 7 cm by 5.2 cm (70 x 52 mm), Gold tracers inserted Nov 21 for CyberKnife x-ray 3D movement tracking. Thu Dec 1st,2011, CyberKnife planning. Dec 16th, treatment 1/3 done to whole liver. Dec 19th, treatment 2/3 done to whole liver. Dec 21st, treatment 3 failed, couldn't get tracer alignment. Dec 22nd, treatment 2.5/3 done using 2 of 4 tracers. Final 0.5 treatment was to be done Tue Dec 27th. Cancelled due to complications and hospitalization.

»
12 lung tumors -- largest is 8 mm in size (0.8 cm)

»
1 lymph node tumor -- near left renal vein & artery of left kidney (1.4 cm). Nov 14th: Ultrasound done of both kidneys and bladder area, all 3 areas are cancer free.

» 3rd-8th brain tumors -- 6 new brain tumors. Sizes all less than 5mm(0.5cm). Some as small as 2mm(0.2cm). Full brain radiation or CyberKnife TBD in Jan after 2nd MRI to see speed of growth.

Inactive Tumors:
» 2nd brain tumor -- Killed via CyberKnife Sep 29/2011, 5 mm in size (0.5 cm).
» 1st brain tumor -- Killed via CyberKnife May/2011, was 20 mm in size (2 cm). Nov 21st, still showing brain tissue swelling, but not active.
» Original Esophogeal Cancer tumor (source of everything) -- Surgically removed June/2010 by 3-field Esophogectomy. Was roughly large egg sized.

[ Note: 2.54 cm = 25.4mm = 1 inch ]

5 pictures included in album


2011_11_16, Shane in BIG CHAIR



Link to 34 surgery June 2010 pictures and some post surgery shots.

Latest Picture

Latest Picture
Shane - 2011_11_27, Photo Shoot lighting prep

Thursday, December 29, 2011

2011-12-27: Tue CyberKnife treatment 3 of 3 (fail)

This day didn't start well, end well, or get prolonged into the next day well. Though I suppose it finished overall well. 

Note: Thanks very much to all friends, parents and relatives that helped out during these troubled 3 days.

Tuesday, canceled CyberKnife because of two reasons:
  • (1) Swelling feet from last Thursday's hydration treatment, this indicated that my liver or kidney was not working or something else bad happened. 
  • (2) I was spitting up something dark that could have been bile or blood as of 2 AM that morning. The CyberKnife people convinced to come in to the hospital to be checked out.
What they found out was that I had a heart rate of 143 about 25 to 40 beats higher then they thought was safe.  

I also think that it was during the course of Tues's investigation that it was discovered that I was spitting up blood, but that it was from cutting what may have been a stomach ulcer around 2 am with a sharp rice cracker. The spit up sample had a sample of blood mixed with stomach acid (partially digested).

Wednesday, I received a phone call early in the morning from one of the J.H. doctors. They had booked me for:
  • an ultrasound of my legs and 
  • a CT scan of my chest. 
  • Both were to look for blood clots that may have caused the foot bloating.
Results:
  • No clots anywhere to be found. 
  • + again, a high heart rate (134 this time)
  • + the CT scan showed fluid building up around my heart and around my right lung.
 These results were enough to convince Kaye and I to commit me to the hospital for the night.

Wednesday night - Thursday morning:
Slept and ate at the hospital.
  • "Slept" in a quad room with a bunch of very acute care patients requiring help to almost everything including bathing and peeing. So "Sleep" was a relative term.
  • Once again (last time my July2010 surgery), since hospital beds are plastic, their pillows are plastic I had a tendency to sweat in them, then have the sweat pool against the plastic resulting in awesome air-conditioning. Which sucks when you're cold. So had to my change clothing a lot.
  • Had my 3rd seizure ever while there. Same symptoms as before, right hand starts shaking a little then coming up without control (missing the nurse's button which I was aiming for!) until I electrocute (seize) and black out. Then I wake up and notice an IV injection sight (rip it out bloodily) see a nurse with a flash light whom I recognized doing his nightly hourly rounds and asked him "why am I in the hospital?". I then slowly started to recall everything that lead up to that point and have to explain my seizures to the nurse.
  • Received a few blood tests during the day
  • Also did a angio cardio gram of my heart. My heart looks normal (Yay!)
Most importantly, the last thing we did at the hospital was to "tap" my back and drain the fluid from beside my lung and heart.

I had Kaye take a photo of it: We withdrew almost a whole litter (think bag of milk!) (actually 750ml) out of my chest. This makes a huge difference in my ability to breath, cough, speak, etc. I went from collapsed lung to expanded lung fast enough that it was more difficult to do all of the above at first before they started to repair themselves.

So that's about it. I'll let Kaye expand on anything I may have missed. I have to admit that "sleeping" was not a highlight of my stay, so I'm quite tired as I write this to answer everyone's questions.

-- Shane

4 comments:

  1. Once again, Shane, thank you for taking the time to post and keep us all up to date. I tend to check your blog daily, so I do worry when I don't see anything posted after a procedure. Imagine I'm not the only one. Very very generous of you. Hope that the (pneumocentesis?) helped a lot and that you are feeling better. Love to all, and most of all, hope you are able to sleep better now!

    Noella

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  2. Too tired to blog. The accumulated waiting periods at the hospital were horribly exhausting and I got food poisoning from the patient/staff kitchen on Shane's floor. But I'm glad that the overall experience benefited Shane and alleviated his symptoms of shortness of breath, pain and fatigue. The health care team at the hospital performed a thoracentesis, guided with ultrasound and drained over 750 ml of pleural fluid from Shane's right lung. When the porter returned Shane to his room, I noticed immediately his increased energy level and the ease of his respirations, despite the pain from the puncture wound in his chest cavity. We, of course, took pictures of the vacuum bottle that contained all the drained fluids from his lungs; still warm from his body. Yea, eww. Will post them later. k.

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  3. Hey Shane, Thanks for the update. Like Noella said there are many of us reading your blog and following along, though not everyone makes a comment. We are all thinking of you. I walked through the Juravinski Centre yesterday to visit someone in the Henderson Wing. I was wondering if I would see you or Carolyn there as I walked through. I hope that you were able to catch up on your sleep last night. XO Charlene

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  4. Shane, you are so amazingly strong you astound me. Wondering, after all you've been through, what the results of the actual cyberknife were. Was anything useful accomplished?

    Love always,
    ...Deb

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