Short Executive Status (Summary) -- Blog is below

Active Tumors:
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5+ liver tumors -- largest is 7 cm by 5.2 cm (70 x 52 mm), Gold tracers inserted Nov 21 for CyberKnife x-ray 3D movement tracking. Thu Dec 1st,2011, CyberKnife planning. Dec 16th, treatment 1/3 done to whole liver. Dec 19th, treatment 2/3 done to whole liver. Dec 21st, treatment 3 failed, couldn't get tracer alignment. Dec 22nd, treatment 2.5/3 done using 2 of 4 tracers. Final 0.5 treatment was to be done Tue Dec 27th. Cancelled due to complications and hospitalization.

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12 lung tumors -- largest is 8 mm in size (0.8 cm)

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1 lymph node tumor -- near left renal vein & artery of left kidney (1.4 cm). Nov 14th: Ultrasound done of both kidneys and bladder area, all 3 areas are cancer free.

» 3rd-8th brain tumors -- 6 new brain tumors. Sizes all less than 5mm(0.5cm). Some as small as 2mm(0.2cm). Full brain radiation or CyberKnife TBD in Jan after 2nd MRI to see speed of growth.

Inactive Tumors:
» 2nd brain tumor -- Killed via CyberKnife Sep 29/2011, 5 mm in size (0.5 cm).
» 1st brain tumor -- Killed via CyberKnife May/2011, was 20 mm in size (2 cm). Nov 21st, still showing brain tissue swelling, but not active.
» Original Esophogeal Cancer tumor (source of everything) -- Surgically removed June/2010 by 3-field Esophogectomy. Was roughly large egg sized.

[ Note: 2.54 cm = 25.4mm = 1 inch ]

5 pictures included in album


2011_11_16, Shane in BIG CHAIR



Link to 34 surgery June 2010 pictures and some post surgery shots.

Latest Picture

Latest Picture
Shane - 2011_11_27, Photo Shoot lighting prep

Monday, April 18, 2011

New bad news... a bad fall caused by seizure and a new tumor

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Old bad news made public:
Ok. I'm going to reveal something to the general public that was not common knowledge (my immediate family knew, and only a couple others).

Before my latest (current) round of Chemotherapy started (5 weeks ago), I was diagnosed with the cancer being deemed terminal this time. Since it was esophageal cancer that moved through the blood stream to the liver, they said that for people in that specific condition there isn't usually a cure (since it is all through my blood instead of confined to its original location, regardless of location, could have been liver, esophagus, other... didn't matter. It is a new ballgame once it enters the bloodstream...). They have had cases where they were able to prolong life for up to 12 months, but also, (when they chose to treat the symptom instead of the cause and immediately did surgery) people that lasted as little as 3 months. On average, they say, most people have about 6 months in my condition. Of course our hope is I have longer and we chose not to make public the declaration by the doctors.

Serious event / accident that happened today:
Today, I had a seizure and passed out, falling and injuring my mid back/spine and the back of my head (also scraping my hand and getting a fat lip). The seizure attacked my control of my right arm, which after a second had a painful spasm (making me drop what I had in my hand). Then it felt like my head exploded and I remember nothing until 30 minutes later after Kaye had returned home. So the next thing I remember is she had moved me to a chair and was applying an ice pack. I probably fell back onto the open dishwasher door/tray because I was emptying dishes at the time (so I'm lucky I didn't impale myself on cutlery, which was there!)

Kaye described me as on the floor sitting up (about 15 minutes after it happened, when she got home) with cutlery in my hand, but not doing anything except looking spaced out. I was only able to respond to all her queries with "I don't understand". Another 15 minutes later (about 30 in total) I started getting cognitive function back and I remember from that point on and was able to respond to questions.

She checked my blood presure and gave me some food and drink and then we went to the emergency ward of the Milton hospital.

Hospital Tests:
  1. I was then given an extensive blood test for nutrition, blood cell counts (red and white) and many other indicators.
  2. I was then given a CT scan of my head to try to find out the cause of what happened.
  3. I was then given an X-Ray of my back (side and back facing) to see if I had done any spinal damage. As I was in intense pain and could barely walk with a cane.
Results:
  1. Blood test was good. No problem discovered. Everything within normal parameters.
  2. CT scan showed a  2 cm diameter tumor in my left brain lobe. It had a slight hemorrhage in its middle (bleeding) that may have been the cause of the seizure. That sucks...
  3. X-Ray scan showed nothing wrong.
FYI: I've never, in the past year, had a scan of my head. So we don't know how long its been there, if it has grown, shrunk or what... Also in the past year, I had inquired why they never scanned my head (since I was worried about it on a number of occasions) and their answer was they wanted to limit my radiation exposure to what was necessary and they had no indication of anything wrong with my head (little did they know...)

Futher events:
  • I have been given a new prescription for anti-seizure drugs that I will start taking today.
  • I will have to follow up with my family doctor later this week to see how I'm progressing and if the dosage of the anti-seizure drug is appropriate.
  • I have been scheduled to get a portacath installed early May. It is like a PICC line, but a more advanced, less annoying version. Look up portacath on Google or Google images to see what they are. Why? I'm becoming a pin-cushion for needle injections, and with my thin veins they sometimes burst them... so it's annoying. Also, if I'm going to be seeing doctors for the rest of my (likely short) life then I want to be more comfortable.
  • Tomorrow (Tue) I have my regularly scheduled chemotherapy session and visit to the Juravinsky Cancer Center. At which point, we'll show them the CT scan and blood results (we got a copy of each, since Milton and Hamilton hospitals aren't connected for records.)
  • I have also been told that I now legally cannot drive. The doctor said he was obligated/required to report the seizure/tumor to the ministry of transportation.
That's about it for now.

Oh, and for goodness sake I must stress WE HAVE NOT GIVEN UP!!!! So stop saying we have (those who are)!!!! We're just planning for the worst, but we haven't given up on hoping for the best! If I had given up, then I WOULD NOT BE HAVING CHEMO! Currently it is the only viable option since it is rampant in my blood stream, so we are pursuing the only option they say should have the most benefit. Stopping to remove a tumor or two (which requires weeks/months prior-to and after surgery of no chemotherapy) would just give the rapidly growing and spreading cancer cells free reign on my system. That would just be stupid, or giving up... WHICH I HAVEN'T! So stop saying I have, I'm sick of it! And as for these reports, and what the doctor says... usually I report the facts only and leave emotion out of it. So it is not ME saying I'm terminal, it is the doctors. Doesn't mean I've given up, just means that I've put my affairs in order (just in case), and we'll see if the doctor is right or wrong.

Shane

4 comments:

  1. in all my time following your blog it has been obvious that you do not give up and will not give up fighting - good for you !!!!!

    Kevin

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  2. Thanks for the disclosure, Shane. I know it took guts to put all this out there. Let's all stay positive and try to enjoy life as much as we can.

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  3. I'm sending you a 'psychic megaphone', so that you can spread the word farther and more easily. Never thought for once that you had given up. Good for you for setting the record straight!

    Noella (Been meaning to write for a while, but thought that you had more important things to do than read/respond to me. Still, please know that you are in my thoughts often!)

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  4. Since hearing about your illness Shane, and following your blog of treatments, it is clear that you are a fighter and I admire your strength and courage. You are in my prayers always!!
    Krista

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