Short Executive Status (Summary) -- Blog is below

Active Tumors:
»
5+ liver tumors -- largest is 7 cm by 5.2 cm (70 x 52 mm), Gold tracers inserted Nov 21 for CyberKnife x-ray 3D movement tracking. Thu Dec 1st,2011, CyberKnife planning. Dec 16th, treatment 1/3 done to whole liver. Dec 19th, treatment 2/3 done to whole liver. Dec 21st, treatment 3 failed, couldn't get tracer alignment. Dec 22nd, treatment 2.5/3 done using 2 of 4 tracers. Final 0.5 treatment was to be done Tue Dec 27th. Cancelled due to complications and hospitalization.

»
12 lung tumors -- largest is 8 mm in size (0.8 cm)

»
1 lymph node tumor -- near left renal vein & artery of left kidney (1.4 cm). Nov 14th: Ultrasound done of both kidneys and bladder area, all 3 areas are cancer free.

» 3rd-8th brain tumors -- 6 new brain tumors. Sizes all less than 5mm(0.5cm). Some as small as 2mm(0.2cm). Full brain radiation or CyberKnife TBD in Jan after 2nd MRI to see speed of growth.

Inactive Tumors:
» 2nd brain tumor -- Killed via CyberKnife Sep 29/2011, 5 mm in size (0.5 cm).
» 1st brain tumor -- Killed via CyberKnife May/2011, was 20 mm in size (2 cm). Nov 21st, still showing brain tissue swelling, but not active.
» Original Esophogeal Cancer tumor (source of everything) -- Surgically removed June/2010 by 3-field Esophogectomy. Was roughly large egg sized.

[ Note: 2.54 cm = 25.4mm = 1 inch ]

5 pictures included in album


2011_11_16, Shane in BIG CHAIR



Link to 34 surgery June 2010 pictures and some post surgery shots.

Latest Picture

Latest Picture
Shane - 2011_11_27, Photo Shoot lighting prep

Tuesday, August 31, 2010

Added Pictures.

Blog now has pictures.

Two parts:
  1. Latest picture image (large image)
  2. Slideshow of all images since before surgery to now. The slideshow can be paused, forward/backwords, or you can click on an image to see it large with a descriptive caption of what you are seeing. This also takes you to the Picasa web album that is hosting the images and allows a great deal more that can be done with the images.
Shane

Monday, August 30, 2010

Summer Fun - baseball

Kaye, her dad, and I played baseball today! I batted, Dale was infield catching, Kaye was outfield catching. Then when I ran out of juice, they played catch together. Kids played in the splash pad, Kaye's mom sat on the bench and watched. Good outing overall.

I lasted longer than I thought I would, and only missed a few balls. Letting gravity do the work mostly, so no home runs for me. But was able to get the ball to Kaye in the outfield 1 out of every 2 tries (if her dad let it past). So it was a good thing my left side was fine. The right side was just there to direct the bat.

So we had fun. :-)
Shane

Saturday, August 28, 2010

Stretched throat is helping.

All around good news:
  • Throat stretching means I can eat "normally" and I'm not restricted to baby food. Had tacos and burgers and fries in the last few days. Hopefully they will help me stop loosing weight (down to 126 lbs).
  • Small instestines have resined themselves to the fact that they have to assume the role of the stomach and digest food for me. So the pain is quite tollerable now.
  • I haven't used pain killer to go to sleep (because of stomach or rib) in more days than I've kept track of now. However, during the day in periods of high activity, or consumption of stupid food choices (refined sugar still gives me cramps / the runs and hurts) I still occasionally have to have a pain dose.
  • I've been tattooed for the radiation therapy in Sept. But that means I can't gain much weight (or loose much) so the tattoo marks stay as relevant positioning tools.
Radiation questions:
  • I'm not having radioactive materials placed inside me that attack tumors. I'm being scanned by rays. So that means I will NOT be radioactive to others. So hugs are still safe. :-)
  • Radiation machine will circle me and target (like a laser printer for a computer) the areas requested by the doctors from multiple angles. So it is going to be very selective what they "target".
Regards,
Shane

Thursday, August 19, 2010

Dr. Miller follow-up

Dr. Miller considers the surgery a success. No complications, tumor fully removed, sample of lymph nodes taken. No problem.

However, I will have to get a few endoscopy visits to enlarge / stretch my stomach/esophagus opening as the scarring has made the swallow hole very small. It can currently only fit a large green pea (Advil extra strength migraine gel pill got stuck, had to force through and there was an audible pop, so that's apparently my limit).

Other than that, X-Ray shows stomach "tube" is in the correct location (follows my spine a bit on my right side) between my heart and lungs. All other parts of x-ray also look good, no lung problems etc.

He estimates my cough is due to constriction on my lungs because of the stomach, also other nerve irritation, but no fluid in the lungs, no collapsed lungs, just irritation. So my body has to adjust to everything. Until then I have to resist the urge to cough and get used to a restricted air flow (that's why I feel out of breath so easy!)

Great...

Shane

Tuesday, August 17, 2010

Bad news - 3 more months of treatments

Ok, met with the triple team of doctors (chemo, radiation, surgical) at the Juravinski Cancer Center (aka JCC) in Hamilton yesterday. I'm meeting with the surgeon from St. Josephs (Dr. Miller) tomorrow.

The JCC team says the following:

Pros:
  • Cancer tumor surgery removal was "complete" and successful. Size was about that of a large egg. 3x3cm round for most of it, with largest measurement around 4.6cm. (yay that is gone!)
  • Cancer was not present at the top of the esophagus removed, and not present at the bottom of the stomach removed. So cancer had not spread as far as surgery was performed (yay).
  • Cancer had not spread up the nerve sheaths that trigger digestive fluids in the stomach, so risk of cancer spreading up the nerves to other areas of the body is negative. (yay)
  • Cancer tumor did not break free of the stomach/esophagus lining. The stomach has 4 layers: mucas, the one above mucas (forget its name), muscle tissue then a final cell membrane. Tumor had breached the mucas and 2nd lining, but was just starting to touch the muscle lining. So the tumor was contained to the surgical area and therefore risk of missing some of it was negative. (Yay).
Cons:
  • Lymph nodes sampled around esophagus, stomach, liver tested positive for cancer cells (not full tumors, just microscopic cells).
  • 13 nodes sampled, 5 tested positive for cancer cells.
  • That means roughly a 20% chance of those cells developing into tumors later in my life
Solution:
  • To reduce the 20% chance of reacurrance down to 10%, it is recommended that a combination of radiation treatment and chemotherapy be done.
  • Sep 7th they will start radiation daily for 5 weeks.
  • After that, I will go through the same chemo as last time for a couple of months.
Radiation Info:

Radiation is quick, just like a regular X-Ray, so appointment will be 10-15 minutes long, tops. Travel will be the killer. However, they have shuttle service as far as Toronto to Hamilton and already have some Milton clients. So I'll hitch a daily ride with them to save on fuel, ETR407 and parking fees.

The intestines don't allow more than 45 rad units before damage, but they want to pump 65 rad units into my affected areas. So I will be getting a chemo drug that will enhance radiation sensitivity in the lymph nodes so that a 45 rad unit dosage will do 65 rad units worth of attack therefore not damaging the intestines (which won't increase in sensitivity and will only receive the 45 dosage level).

Side effects will be general fatigue, possible redness (like sunburn) in folds of the skin only over time. Side effect of chemo drug *may* be inflamed mucus membrane from my mouth all the way to my anus (let's hope I don't get that side effect).

Last week of August they will compare old CT scans of my organ locations to a new CT scan of current organ locations and apply tattoos to my skin to indicate where my the radiation is to be sent, and at what dosage level. After that, I will not be permitted to gain or loose weight at all, as that can stretch, shrink my skin and therefore the tattoo locations. (That will be a challenge.) I will have the help of a dietitian but if I have difficulties, then they will insert a feeding tube into my stomach and directly influence my eating habits.

Chemo Info:

Chemo will be the same as last time, but because my swallowing hole is too small for pills now because of the surgical scars, they will attach a pick line to me and a pump that looks like a baby bottle. The bottle pump will slowly pump the chemo into me 24/7 and will only need to be replaced / flushed once per week.

It does mean that daily activities and showering are complicated by the pick line and the bottle though. But it also means fewer "missed" dosages due to nausea or vomiting or just plain old forgetting to take the pills.

Chemo treatment will take me into November. So with a few months of recovery, it looks like I won't be back to work until 2011 some time.

Regards,
Shane

Sunday, August 15, 2010

Recovering some more

Rib is getting better. After many chiro visits it is almost back where it is supposed to be. I am taking the tylenol 2's less than before. Main concern is now getting stomach to eat more normal food. Anything solid still hurts like hell to eat, but so long as it is chewed REALLY well and is accompanied by some sort of liquid it is possible to eat solid foods now. I'm still sticking to mostly soups.

Kaye overboiled some beef bones for a whole day to the point that the water had to be replaced a few times  leaving a gelatinous calcium, fat and hopefully some other goodness rich goo from the bones and bone marrow. I've been adding that to my soups and I have actually gained almost a pound back. A few days ago I weighed in at 128.8 lbs. Up a bit from 5 days before that.

I can sleep a whole night now without pain meds. Most reason to take them now is if I'm eating whole foods (pain in the abdomen) or if I'm going to be taking a really long walk or things like supervise Nia's BD party today at "Skedaddle kids" or do a few (slow motion) kata at the AMA karate demo at the Milton Fairgrounds yesterday. I picked up some sun from the Fairgrounds on my knees and shins (from sitting on a lawn chair), stings a bit, but should be ok by tonight.

Overall, things are looking up.

Doctor Visits this week:
  • Mon/Wed/Fri visits to Chriopractor still planned. He isn't in the following week, so this will have to last me.
  • Oncologist (Chemo doctor) appointment on Monday 16th. She better say I'm clear to NOT do another round of chemo. The alternative would really suck, as I have no fat left!
  • Surgeon (Dr Miller) appointment on Wed. 18th.
After visiting both doctors, I'll find out if I'll have to extend to long term disability or if I'll be able to go back to work the beginning of September. Short term disability runs out Aug 27th (ish).

Shane

Tuesday, August 10, 2010

Rib and eating

Chiro is helping the rib. I can sleep a whole night now. Still hurts, but is more bearable.

Food is a challenge. Some foods hurt after I eat them (like cramps). I still can't eat a whole cup of something at one sitting. I think I'm slowing my weight loss by eating higher calorie foods (haven't checked in a few days).

Shane

Friday, August 6, 2010

Rib + Chiro

I've seen the Chiro twice now. Wed and Friday mornings.

He mostly adjusted my neck and areas around the rib (that is out of place). This is correcting my improper sitting / sleeping postures due to my rib pain. So I now feel more "straight" or "upright" when walking / sleeping / sitting.

He must also be doing something right with the rib. He's only been doing micro-adjustments with something called a "chiropractic activator" instead of large / gross movements manually by hand. The micro-adjustments will take a number of adjustments for me to really notice a huge difference, but already, after two adjustments I've been able to lie on that side (for 5 minutes) without huge discomfort. So something is improved.

Still lots of pain around rib though. Also, breathing / coughing problem due to pain in rib is still there. My abs are getting really tight / sore from the workouts.

Other than that, all is well. Unless you count the many days of diarrhea... I just (Fri 5pm) took an Imodium to see if I can halt weight loss due to lack of food digestion. I'm down to 128 lbs (from 155 before chemo and 135 at hospital release time). 1991 University freshmen weight was 120 lbs... I don't want to hit that again, I was a walking stick.

Shane

Monday, August 2, 2010

What's with the rib!?

Ok, it isn't nerve damage, looks like I have a rib really out of place, and its a long weekend... I'm definitely going to a chiropractor on Tuesday!

My pain is more focussed now, instead of just everywhere, so I've pinpointed the problem.

Shane